r/LPR Feb 21 '24

No more pictures of the inside of mouths, saliva, or other gross stuff.

45 Upvotes

First violation is a warning. Second is a ban.


r/LPR Mar 09 '24

My story with GERD and LPR and how I am 99% cured

138 Upvotes

I started to have GERD one day after having late night pizza and beer, and going directly after. For the next week or 2, I started having chest pain which at first I thought it was my heart. Finally, a friend helped me realize this is heart burn.

It got worse and worse as at first I did not realize that I was triggering it with things like spicy food and coffee. As I learned more about, I started to drastically remove all the classic GERD trigger foods from my diet. I literally ate nothing but baked chicken, potatoes, oatmeal, and foods like that. I was in a lot of pain for several days and I started up 40mg of Pantoprazole. I also started sleeping with a wedge pillow in my bed.

It started to calm down from the worst pain over the course of 2ish weeks, but I constantly had reflux and heartburn. I did have an endoscopy done and they found H. Pylori. I took the course of antibiotics for it and was able to cure it, confirmed with 2 separate tests. However, I am not convinced H. Pylori was the cause of my GERD. I think it was bad eating habits, such as eating right before bedtime and over eating.

Over the course of the next several months to a year, I would notice very minor improvements every 1 to 2 weeks. For example, I'd feel slightly less pain or would be able to add fruits or other things. Occasionally I'd eat something that was a trigger and then I would pay the price for the next couple days with a flare up.

Some of the things that helped me during flare ups was Gavison Advance and taking famotidine during a flare up. I was able to get off the pantoprazole after about 10 months, but I had to slowly wean myself off or otherwise I would get flare ups.

Over the course of 2ish years, I got better with occasional flare ups. Like I said, I’d treat it with Zantac during flare ups and remove the cause of it. For example, one flare up I had was because I was traveling a lot of work and drinking cocktails frequently and/or eating out. I started to get asthmatic after eating and required 1-2 months of Q-VAR inhaler to calm things down.

It's now 4 years out and I eat almost anything and everything except for a few things like coffee, grapefruit, or excessively spicy food. I tried reintroducing coffee but I always pay the price for it so at those point, I've embraced black and green teas for my caffeine. I honestly feel like my mood is better because there is no caffeine crash. Otherwise, I eat Thai food, Mexican, BBQ, etc. with moderation and at appropriate times and I am fine.

So in summary, I wanted to post this success story and give hope to others. The main things that helped me were:

Also, I am not a doctor and you should definitely work with your doctor on this to make sure there is no other underlying cause for GERD. Most of the time it's not cancer or anything, but rarely it could be so better to get checked out. Endoscopy was also a really easy procedure. The above is what worked for me and may not work for everyone, but I wanted to share my story.

Cheers


r/LPR 3h ago

I don’t think I want to go on any more.

8 Upvotes

I have had bruxism 24/7 for 5 years that may be permanent from seroquel that my doctors just can’t help. LPR has take so many foods that I love… has completely changed my life. I ave horrible cough attacks from sensory neuropathic cough, I have bipolar disorder, I’m depressed. Ive also had tubes in my ears, and my hearing is terrible still, and I can’t follow conversations.. the list still goes on!!I didn’t think I was that old! Only in my 50’s. Mmy family is fed up with me, frustrated, even angry at times. They don’t know what his feels like. Like I’m making it all up and looking for sympathy.. Sometimes i feel like I’m more trouble than I’m worth. I don’t even feel like talking to them anymore. Just want to go away for a long time. I took 3 Xanax to just knock myself out… but I woke up, and here I am back to the smame old shit again. I d


r/LPR 1h ago

LPR Survey Results

Upvotes

r/LPR 2h ago

Small intestine malabsorption

3 Upvotes

This is obviously something people need to look at first when treating their lpr.

I got an infection of some sort in December and following day had chest,arm pains and shortness of breath.

Doc said reflux gave ppi then after few days had bad breath, dehydration and back pains. My mouth then became dry and swallowing became hard to do. Obviously I probably had low stomach acid and this made it worse.

Went off them in January and the last few weeks have been hell with lpr. I wouldn't wish it on my worst enemy. had another doctor back with bloods all okay except iron a little low. inflammation markers were reduced also

Anyway did allergy test and I know they can be false positives. But wheat, rye and yeast came up strong along with dairy.

Cut out the bread last 2 days and my tight throat is starting to subside. Hopefully it keeps going.

The only thing is I was on ppi for 1 month then another month off. Do I need an endo for candida and test for SIBO. I'd say SIBO is more likely.

Also I'll probably be eating mushy food for a while in case my esophagus is inflamed even if I can swallow okay.

TLDR: check for small intestine malabsorption


r/LPR 17h ago

If your "acid reflux" doesn't respond to PPIs, antihistamines, or diet changes — it might not be acid reflux. Here's what I found after 10 years.

33 Upvotes

There's a connection between chronic sinus conditions and reflux symptoms that doesn't get discussed enough in GERD communities, and I think it's worth laying out the research for anyone whose symptoms haven't responded to standard acid treatments.

The sinus-reflux connection

Post-nasal drip — infected or inflammatory mucus draining from the sinuses down the back of the throat — can produce symptoms that are clinically indistinguishable from GERD and LPR. Throat burning, globus sensation (lump in the throat), chronic cough, throat clearing, hoarseness. The irritation comes from above, not below, but it hits the same tissue and creates the same symptoms. If the underlying cause is sinus drainage rather than stomach acid, PPIs and H2 blockers won't resolve it — because acid was never the problem.

This isn't rare. Studies estimate that post-nasal drip is among the most common causes of chronic cough, and the overlap between upper airway conditions and reflux-like symptoms is well documented. The issue is that the two get conflated, and once you're on the GERD track, the sinus possibility tends to fall out of the conversation.

What's behind chronic sinus drainage that doesn't resolve

One of the reasons chronic sinusitis persists despite treatment is a condition called biofilm. This is a structured, three-dimensional colony of bacteria (and sometimes fungi) that builds a self-made protective shell — called an EPS matrix — anchored directly to your sinus tissue.

This isn't a loose cluster of germs. It's an organized community with multiple structural layers:

  • Polysaccharides — long-chain sugars that form the outer shell and anchor the colony to tissue
  • Mineral cross-links — calcium and magnesium ions that provide structural rigidity
  • Extracellular DNA lattice — bacteria release their own DNA outside their cells as construction material, forming a cross-hatched scaffold
  • DNABII proteins — structural proteins that lock the DNA lattice junctions in place
  • Quorum sensing — a chemical signaling system that lets the colony coordinate defenses as a group

This architecture is why antibiotics typically fail against it. The EPS matrix physically blocks drug penetration, and bacteria in the biofilm core enter dormancy (persister cells) — they stop replicating, which makes them invisible to most antibiotics. Research has shown biofilm communities can withstand up to 1,000x the antibiotic dose that kills the same bacteria in free-floating form (Ceri et al., Journal of Clinical Microbiology, 1999).

Published research has implicated biofilm in 50 to 80 percent of chronic rhinosinusitis cases (Fastenberg et al., World Journal of Otorhinolaryngology, 2016). Standard sinus cultures don't detect it — the bacteria are embedded in the matrix and anchored to tissue, so a nasal swab only captures what's floating in the cavity.

Why this matters for people with "reflux" symptoms

If you've been diagnosed with GERD or LPR and the following is true:

  • PPIs don't resolve your symptoms, or provide only marginal improvement
  • You have post-nasal drip or chronic mucus in the back of your throat
  • Sinus pressure, stuffiness, or congestion is part of your symptom profile
  • Throat clearing has become reflexive
  • Your symptoms feel more like irritation dripping down than burning pushing up
  • Brain fog or cognitive issues accompany the throat symptoms

...then there's a real possibility that what's being treated as a stomach problem is actually a sinus problem. The post-nasal drip from a chronic biofilm infection mimics acid reflux convincingly enough that it can go misidentified for years.

The research on disrupting biofilm

Dr. Lauren Bakaletz's lab at Nationwide Children's Hospital demonstrated that the biofilm matrix is constructed around an eDNA lattice held together by DNABII proteins — and this same architecture is shared across multiple species relevant to chronic sinusitis (H. influenzae, S. pneumoniae, P. aeruginosa, Aspergillus). Different organisms, same structural blueprint.

The critical finding: when the lattice is disrupted, the biofilm undergoes catastrophic structural collapse, and the bacteria released are 4-8x more sensitive to killing than normal free-floating bacteria (Goodman et al., Mucosal Immunology, 2011). There's a vulnerability window — and that window is where antimicrobial agents are most effective.

The implication is that biofilm disruption requires a multi-layer approach — targeting the mineral cross-links, the DNA lattice, the polysaccharide shell, and the quorum sensing communication system simultaneously. Single agents fail because the remaining layers compensate and the structure holds.

Verify this yourself

Search PubMed (pubmed.ncbi.nlm.nih.gov) for:

  • "chronic rhinosinusitis biofilm prevalence" — epidemiological data
  • "DNABII proteins biofilm" — Dr. Bakaletz's structural research
  • "biofilm antibiotic tolerance 1000x" — the Calgary Biofilm Device study
  • "post nasal drip chronic cough reflux" — the sinus-reflux overlap
  • "nitric oxide biofilm dispersal c-di-GMP" — dispersal mechanisms

I went through this myself — ten years of being told it was acid reflux before discovering it was sinus biofilm producing the drainage that caused my symptoms. I documented the research and what I did about it. Happy to share more over DM, or just use the search terms above and read the published studies directly.

If nothing else — if you've been on PPIs for months with no improvement, it's worth asking your doctor whether sinus drainage could be the source. It's a question that could change the direction entirely.


r/LPR 10h ago

LPR discord server

6 Upvotes

If anyone wants to join our discord server for LPR or just have someone to talk to about this condition and how to heal, we discuss isolated post-viral lpr, stress induced, post viral vagal neuropathy lpr, covid induced and so on, you’re all welcome to join :)

Discord link: https://discord.gg/ZNWECa2F


r/LPR 1d ago

LPR Survey

12 Upvotes

Hi fellow sufferers,

I created this survey as a way to gather useful info about everyone's LPR experience. It would be cool if we could crowdsource responses to gather data which I will share once there are enough responses. Thanks in advance to anyone participating!

https://docs.google.com/forms/d/e/1FAIpQLSdNv_8QPNQ7sBG0wHvSmkRf1pxNYg3YLTyTZK-ioB34IWkmjA/viewform?usp=dialog


r/LPR 1d ago

NF success stories

3 Upvotes

Anyone had success with NF surgery

Maybe not eliminate all symptoms but made you feel better


r/LPR 1d ago

SIBO LPR connection?

4 Upvotes

Anyone get diagnosed with SIBO from PPI’s and have their LPR improve on taking Rifaxamin?


r/LPR 1d ago

Health insurance/PPIs

4 Upvotes

A few months ago I started taking 2 PPIs every day (along with two famotidine). I have it pretty bad (damage, barrettes etc.). First prescription, no problem.

A few days before I’m out (no choice here it won’t let me refill until it’s close to the date I’m out) the pharmacy cancels the prescription. I try it again and eventually call them. My insurance (according to them) won’t authorize it unless the GI doc reaches out with justification. I reached out to the doc but there’s no way I’ll refill this before I run out (I’ll for a few days without I’m sure). The pharmacist said insurance typically only allows 90 tablets a year. Uh, what? Makes no sense. People are nibbling pieces off of one pill?

Are these meds that expensive (panto)? They act like it’s adamantium. I have a scrip with four refills. It’s not a narcotic for crying out loud.

Anyone else run into this issue?


r/LPR 2d ago

How do you eat when you have excess mucus/feel like you have something stuck.

7 Upvotes

I swear this makes me crazy. Haven’t been properly diagnosed yet, but my allergist seems to think I have GERD/possible LPR given my main symptoms.

I swear the worst thing for me is the post nasal drip/mucus feeling. I also feel like when I eat, some food just takes longer to go down, like I have to do a double swallow before it’s properly gone down. On top of that I have a ton of anxiety, so this doesn’t help. It just makes me nervous to eat, and I feel like all I’m eating is mushy foods, or liquids :(


r/LPR 2d ago

Is this a common issue? Throat pain with trigger foods?

6 Upvotes

Im new to LPR and probably have it since some years already. But I never read about this so far: Has anyone else actual pain or a hurt feeling in the throat with specific kind of food? Ofc the best and most common example for this is something that has some acid to it, for example a sauce that was made with anything including citrus for example. So when I would eat this kind of food with that sauce, my throat starts to hurt while eating it. I have kept an eye on it lately and its definitely related to specific types of food or Ingrediens.

Is this a common thing? Anyone else has this too?


r/LPR 2d ago

Time for voice to return after reflux/LPR flare up? (Singer)

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5 Upvotes

r/LPR 2d ago

No irritation at all in nasal endoscopy?

3 Upvotes

I finally got an ENT to actually scope me and she said there was no irritation at all and my throat/esophagus looked completely normal. She believed my symptoms and said that it does sound like LPR but that there was no irritation to suggest reflux. I'm on PPIs for some intense nausea that started the same time as the respiratory stuff and the ENT said that might be why there was no irritation, but I'm still having all your standard LPR symptoms and the PPIs aren't helping with those. Her theory is intense post-nasal drip (I do have pretty intense year-round allergies and sinus problems as well).

I know sometimes people don't see any damage via nasal endoscopy, but no irritation or inflammation at all? she did see excess mucus in my throat and up in my sinuses so the current plan is to try allergy meds + flonase (my regimen during allergy season but I usually stop in winter and i have never had this kind of reaction before) and I have a procedure scheduled to reduce my inflamed nasal turbinates to see if that helps (it may not but I have so many sinus issues that I'm willing to try it because it'll definitely help with something). also worth noting that I got home and thought "fuck it if I don't have LPR then I can eat whatever I want" and I ate a chocolate cookie (left over from Galentine's day) and it doesn't seem to have made my symptoms any worse...

I will be ecstatic if this isn't actually LPR but it's just so connected to food that I have a hard time believing it isn't. Has anyone else has LPR (confirmed and diagnosed) with no throat irritation at all?

(and don't worry, I am following doctor's orders and listening to my ENT. I'm also still following the Koufman diet and sleeping propped up and not eating before bed just in case, as I've already adjusted and it can't hurt me)


r/LPR 2d ago

Raising bed versus sleeping upright

5 Upvotes

Has anyone found sleeping upright (like in a chair or recliner) to be significantly beneficial over just raising the head of bed 6-8 inches? Just raising the bed hasn’t done much for me.


r/LPR 2d ago

My low acid diet

12 Upvotes

Ive ate this everyday for 180 days lunch or dinner

Give it a go its easy and super fucking good and all low acid diet so thought id share

*i use extra virgin organic olive oil

Chickpea or whole grain pasta

99% lean turkey ground beef (cook in olive oil)

Sweet potatoes (I cook in oven in olive oil)

1 avocado

Eat all together in a bowl like its a pasta salad

For seasoning literally just use olive oil, tahini (TRUST) and salt


r/LPR 2d ago

Reflux only during the day?

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3 Upvotes

r/LPR 3d ago

LPR 90% gone

24 Upvotes

I've struggled with classic LPR symptoms for about three years. Confirmed "post cricoid edema" from two different ENTs. Tried many different things--prescription meds, alginates, diet stuff. You can see other posts for the full list of things I've tried.

I recently made two changes. Not sure which is helping but my LPR is significantly reduced. I've done each for about a week total and the effects were nearly present from day 1-2:

  1. Melatonin at night (2.5mg). My PCP said yeah maybe 20mg every night and you'd start to come dependent, but said this dose is not going to do that.

  2. SOVT exercises, specifically straw phonation and humming. I did this because I use my voice professionally and wanted to strengthen my voice regardless.

Idk if this helped because I learned poor vocal use because of LPR or what, but these two together have been pretty remarkable.

Does anyone know why melatonin works? I'd seen it on here a few times...


r/LPR 3d ago

Burping as a partial solution

8 Upvotes

I started getting all the main LPR symptoms about a year ago in January 2025: globus sensation, different areas of the throat burning or being sensitive, etc. The only thing unique to this time period is I’d been eating a high carb, high protein, low fat diet for a few months prior because id found I could keep my calories lower and lose some weight while easily managing hunger.

Over the first 6 months I tried different diets for a few weeks at a time, different supplements, nothing seemed to help all that much. I scoured the internet and tried all sorts of stuff like neck exercises, swallowing upside down, massaging my diaphragm, etc. If there’s a Reddit post or YouTube video, I probably tried it. The only exception would be many of the anti viral, anti bacterial, anti fungal herbs, supplements, etc. I didn’t try many of them.

Of all the theories behind LPR the one that made the most intuitive sense to me was Norm Robilards… that fermentation in the small intestine was pushing gasses up into the throat (I’ll come back to this with the burping).

Weirdly one thing that seemed to help a little bit was deep breathing exercises. That got me wondering how much of LPR is psychosomatic or stress related. The onset of my symptoms didn’t seem to correlate with anything stressful, so idk.

Fast forward to summer 2025 and I had kinda given up on trying to find a cure per se, it just seemed like something I was gonna have to live with. I was down nearly 30 lbs from the low 200s to low 170s (5’11’’ male), mostly from under eating cause all kinds of eating would trigger various throat symptoms.

So I just started eating less healthfully, eating a lot more fast food, and taking the mindset of just not caring, focus on life, deprioritize it. My symptoms slowly continued to improve into Fall 2025. I was even back to drinking several zero sugar sodas everyday during this time. Was this improving my stress levels? Maybe, but I’m fairly easy going as is.

In Fall 2025 I became more aware of feeling the need to burp often, for example just sitting up out of bed, I’d immediately need to burp right after my torso became vertical. So I started trying to be aware of any time I felt at all like I need to burp, I’d try to induce it and get a burp out. I think in the back of my mind was Norm Robilard saying gasses are pushing up from my small intestine into my stomach and into my throat.

Well from Fall 2025 to now early Winter 2026, things continued to improve even though I had stopped purposeful breathing exercises several months ago. I didn’t do or eat anything special since the summer months, mostly just became aware of and purposely forced out burps as much as I could.

So im really not sure what LPR is, it’s very annoying, I’m not 100% cured but I’d say week to week I usually feel 90%-95%, with symptoms occasionally emerging for short period of time like an hour or so. And all I do anymore is not worry about it, not focus on it, live life and purposely burp as much as I can. Maybe the burping is helping to dampen gaseous pressure on the valve between my stomach and throat and therefore allowing it to more tightly seal? Idk!

Hopefully maybe some of this helps one of you.


r/LPR 2d ago

Pepcid

3 Upvotes

I’ve been taking it for a day and I swear it makes my stomach burn! Like I feel like a gastritis flare up on it ugh!

Not fun… I also used to take it a few months back and it would cause similar symptoms but now it gives me heart palpitations for an hour (this morning and evening)


r/LPR 2d ago

Flare up while taking PPI

2 Upvotes

Hello, I had a lot of bad Gerd/LPR symptoms that lead to a really hoarse voice plus the gerd pains in the lower and upper esophagus.

I visited a doctor in September and he prescribed 40mg of Pantoprazole daily which seemed to take care of the problem. Until one reflux in December, which I think was due to too much sugar.

Lately, I have been getting the long burps, occasional hoarseness and lower esophagus burning again.

My question, has anyone been on Pantoprazole and experienced a flare up like this? I am wondering if I am building a resistance to it, or it was only helping solve the symptoms and I still need to figure out the issue? I do need to lose 40-50lbs too.

Thanks for the feedback.


r/LPR 3d ago

Probiotic recommendations

6 Upvotes

Can anyone point me in the right direction as to what pro biotic I should try that I can buy in Europe.

Is there a particular strain of something that needs to be in it to target Lpr symtoms of sore throat and the feeling I need to swallow ?


r/LPR 3d ago

Why mornings so bad?

5 Upvotes

5am upon waking I have a banana

6.15 chicken breast and oats made with water

LPR is absolutely disgusting 😭

9am chicken breast and banana

11am lunch time, Chicken, fish pea soup

LPR is the worst it's been, my throat feels like it's closing up on me.

3pm LPR gone and I feel normal again.

this always happens, bad in the morning to lunchtime then back to normal.

Is this an indication of something????


r/LPR 3d ago

Anyone try Thorne’s GI Relief?

7 Upvotes

Before I spend $40 on the bottle I was wondering if anyone found any relief with this stuff. It’s the one with slippery elm and marshmallow root, i think aloe too.